What information does the Foundation collect from me as an end user?
You can browse our Sites without telling us who you are or giving us any personally identifiable information about yourself. When you interact with us through your computer, our Site does record certain non-identifying site usage data, such as the number of hits and visits to our Sites.
In order to tailor the information on this Site to your specific needs, you may, at your sole discretion, elect to complete a profile or register with the Foundation in order to purchase products, make donations or participate in events on-line.
If you elect to complete a profile or register with the Foundation, you will be asked to provide personally identifiable information that may include among other things your name, address, age, gender, e-mail address, phone-number, fax number, date of birth, whether you are a cancer survivor, type of cancer, phase of survivorship and other healthcare information (collectively referred to as “Profile Information”). Once you provide us with this information you are no longer anonymous to us. We also collect personally identifiable information, such as your user name and password, whenever you login to your account and may in limited circumstances ask you to provide credit card information and other personally identifiable information when purchasing items that are offered for sale or when making a donation. We reserve the right to request any additional information necessary to establish and maintain your account.
Some of the programs and activities on our Sites could require the provision of personally identifiable information about you beyond what it is in your Profile Information and you may voluntarily choose to participate in such programs and activities.
Our Sites employ “cookies,” which are alphanumeric identifiers that we transfer to your computer’s hard drive through your web browser. We employ “cookies” to perform three functions: to let us know how long you are logged on to our Sites and to automatically log you out if you are inactive for over thirty minutes; to store your user ID and password so that when you return to our Site you won’t have to re-enter some or all of that information; and to provide us with statistics regarding what pages of our Sites you visited, and how long you spent there. You may configure your browser to accept all “cookies,” reject all “cookies,” or notify you when a “cookie” is sent. However, when accessing an area that requires a password for entry, “cookies” are not optional and continued paths through the password area will not continue if cookies are not enabled.
Information Collected Off-Site
Does the Foundation track my IP address?
When you visit the Sites, our web servers automatically collect limited information about your computer’s connection to the Internet, including your IP address (which is a number that lets computers attached to the Internet know where to send you data). Your IP address does not identify you personally. We log your IP address to (i) deliver our web pages to you upon request; (ii) tailor our Sites to the interests of our users; (iii) help diagnose problems with our server; (iv) administer our Sites in order to constantly improve the quality of the Sites; (v) measure traffic within our Sites; and (vi) prevent fraudulent use of the Sites by others. The Foundation may also track what we call a Customer Identification Number (“CID”), located within our URL, to determine the web site from which you navigated to get to this Sites. This CID number does not contain personally identifiable information, and the CID number may not be apparent to you. We may also track and analyze non-identifying, aggregate usage and volume statistical information from our visitors and users (all of this information is “Aggregated Data”).
How does the Foundation use my information?
The Foundation does occasionally share your name and address with affiliated organizations with whom the Foundation has a common interest.
The Foundation also employs persons and entities to perform functions on our behalf, such as fulfilling merchandise orders, sending mail and email, processing credit card payments or helping with the maintenance or set up of our servers or computers, providing online analytics or assessing web site effectiveness with A/B testing. Such persons or entities have access to your personally identifiable information needed to perform their functions, but are contractually prohibited from using such information for any other purposes.
When you create a profile or register with the Sites, you become a registered user with password access and we use your Profile Information to verify your identity, create your user account, and help us to offer you more personalized features, improve our Sites, and provide you with information that is of the most interest to you. Such Profile Information is also compiled and analyzed on an aggregated basis that does not reveal your personal identity and is also considered “Aggregated Data”. In addition, you may from time to time be provided with or given the opportunity to obtain additional information of interest, updates, surveys, bulletins or other communications from the Foundation or its partners (“Communications”) via e-mail. You may select to opt out of future Communications by following the opt-out provision below.
If you choose to make a donation to the Foundation, we will use your credit card information only for this transaction through our secure online payment system. The Foundation does not retain credit card information.
How does the Foundation share and disclose my information?
Participation in certain programs available on the Sites means that information you provide may be distributed or released publicly. Your participation in these programs is voluntary [and you will be notified at the time when your personally identifiable information is collected if your personally identifiable information will be shared].
For petitions and surveys you’ve signed or completed, we treat your name, city, state, and comments as public information—for example, we may provide compilations of petitions, with your comments, to world leaders and other targets, or to the press. We will not make your street address publicly available, but we may transmit it to the designated target as part of a petition. This is a standard industry practice in such situations. In no such case will we disclose your email address or phone number, without your permission. We may also make your comments, along with your first name, city and state available to the press and public online. the Foundation is not responsible for the content of use of your email address by campaign targets.
With your explicit permission, personally identifiable information gathered through our Sites may be shared with the following affiliated groups:
- World leaders, news publications and other targets when you choose to use our email tool to send them messages.
- World leaders, news publications, and the general public when you sign petitions or complete surveys.
We may share the Aggregated Data that we collect with business partners, content providers or other third parties to advance goals of research, education, dissemination of information, and the provision of services and support for the treatment of cancer patients.
We will also disclose your personally identifiable information if we reasonably believe we are required to do so by law, regulation or other government authority or to prevent harm to yourself, the Foundation or others. In addition, we may transfer your personally identifiable information to a successor entity upon a merger, consolidation or other corporate reorganization in which the Foundation participates or to a purchaser of all or substantially all of the Foundation’s assets.
How does the Foundation protect my Information?
The Foundation and/or its subcontractors institute various electronic and administrative safeguards that are reasonably designed to protect your personally identifiable information from unauthorized access, including firewall technologies to help protect your data from hackers and other unwanted visitors. Also, access to the Profile Information contained in your account is protected by use of a password, so you should keep your password private and secure. In the event that we collect your credit card information, we will additionally utilize secure software to encrypt your credit card information you input. Despite use of these safeguards, there are inherent risks in transmission of electronic information. We cannot guarantee and do not represent that your personally identifiable information will always be secure from unauthorized access.
We also may use a managed hosting provider and/or other subcontractors to assist us with the provision and maintenance of the Sites. If we do, we will impose on such provider confidentiality obligations for the treatment of information.
Can I opt-out of receiving Communications?
To remove your personally identifiable information from our database so that you do not receive further Communications, you can log into your account and change your preferences in your Profile Information. The opportunity to opt-out will be available for at least 30 days after receiving Communication from the Foundation. Requests filed in a timely manner will be processed within 10 days. Please note that under exigent circumstances, we may be required to send you information about the Sites or your account.
How can I correct and/or update my data?
You may update and/or correct your Profile Information at any time by logging into your account and then adding and/or deleting any information, as desired or necessary.
What about the privacy policies of sites linking to the Sites or to which the Sites link?
We provide links on our Sites to other web sites provided by third parties. In addition, some users access our Sites via another site or a link on another site. We have no control over the sites that link to our Sites or to which our Sites link. We are not responsible for the privacy practices or the content of any site other than our Sites. The existence of a link between our Sites and other third party sites does not imply an endorsement of these other sites. We are not responsible for the content of such other sites, nor for the treatment of personally identifiable information might you provide while visiting such other sites.
Notice to Parents Regarding Participation of Children and Teens.
Disclaimer on Information and Advice
The goal of the Sites is to provide information to cancer survivors and caregivers in an effort to educate them and enable them to more effectively advocate for themselves and participate in making decisions with their healthcare team and other professionals. It is not intended nor should it be construed as providing professional medical, financial or legal advice. The Sites and the information contained on the Sites are not a replacement for obtaining professional medical care or professional legal and financial advice. You should consult a trained medical professional for consultation, diagnosis and treatment of cancer and any topic covered on the Sites. You should consult a trained legal or financial professional for any document covering these topics.
The Sites are intended for personal use by individuals coping with and/or recovering from cancer, those supporting friends and loved ones with cancer, and those interested in learning more about topics related to cancer survivorship. You agree not to provide any personally identifiable information of any third party or to create profiles on behalf of any other person unless you are the parent or legal guardian of a child and you create a profile for your child.
Users Outside of the United States
How do I contact the Foundation?
By email: firstname.lastname@example.org
By conventional mail: Blackout Melanoma Foundation
1100 Town & Country Commons
Chesterfield, MO 63006
By telephone: (636) 579-0640